Category: Uncategorized

Family matters with the Palumbos

Family matters with the Palumbos

By Sophia Thomas   From the time he was born, Michael Palumbo has been in and out of the hospital.  When he was nine years old, he had to have his leg amputated due to pseudarthrosis, a tibial fracture that failed to heal properly. At 23, he had two bypasses to...
NF young adult Garrett Dohlke is finding his voice

NF young adult Garrett Dohlke is finding his voice

By Sophia Thomas    In the fall of 2016, Garrett Dohlke, then 15, was taking to the roads of Saint Louis, Missouri in preparation for his driving test. He’d just started his sophomore year of high school and was full of excitement for everything that lay ahead....
Pursuing a diagnosis with Jak Henderson

Pursuing a diagnosis with Jak Henderson

By Sophia Thomas    Jak Henderson watched the doctor examine the brown spots scattered across their daughter’s skin and waited for a diagnosis.  Seven-year-old Jillian had been experiencing ear, nose, and throat issues, high blood pressure, and low muscle tone...
NF young adult Zachary York reaches new heights

NF young adult Zachary York reaches new heights

By Sophia Thomas   In July of 2006, Zachary York stood at the top of Mount Whitney, sporting a proud smile and gear from many big outdoor clothing brands on the market.  The climb was the culmination of months of networking and planning. For his high school...
NF Symptoms: Bumps

NF Symptoms: Bumps

I’m sure everyone who experiences NF symptoms gets insecure about their bumps. Especially when people point them out. It’s even worse if they tell you that you should keep them covered up. Well, I’ve been there too, and here is how I succeeded in becoming more...