Get Involved

Join us in the fight against NF! Learn more about how you can become a volunteer, fundraise for us, or become an advocate.

Our Events

We host many inspiring events! Our next NF Family Wellness Retreat is scheduled for August 10-13, 2018.

Our Team

It all started with a child. Learn more about the passionate people who bring the LTF’s mission to life.

Non-Profit Fighting Neurofibromatosis (NF)

The Littlest Tumor Foundation

What is Neurofibromatosis (NF)?

This genetic disorder has three forms: NF1, NF2, and Schwannomatosis. NF1 affects 1 in 3,000 births and causes tumors to grow anywhere in the body, including the brain and spine and can cause a series of other significant health issues. They range from serious skeletal abnormalities to cardiovascular issues to difficult-to-treat cancers. Much is still not understood.

Our Mission

Increase understanding of Neurofibromatosis (NF), empower affected families, advance research of preventative therapies.

Child Tumor Prevention IS Achievable!

Our message is simple: tumors in children, we do not like them. The world needs to know about Neurofibromatosis, so we promote awareness daily. Through collaborations with congress, nonprofit organizations, and others, we work toward awareness, prevention, and – someday – a cure.

Little News




Annalise on Eating Healthy

Personally, I am a firm believer that as humans, we have the ability to make our own choices. I believe that as long as you know the consequences to theses choices, if there are any, it should be on you to make the decision if you want to follow thru or not. I believe...
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Annalise Joins the Wellness Diaries

Hello all. My name is Annalise Kleinschmidt, and I will be writing for the blog. I myself have neurofibromas type 1, as does my mom. We found out I had NF when I was in second grade, due to me having migraines. They did a MRI and learned I had a brain tumor. I did 2...
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Run Little Mom Run

Great news. Our founder is a sponsored North Face athlete! A mom who runs very slow but can go far. She is so excited to run the entire North Face Endurance Challenge Series for the Littlest Tumor Foundation. Neurofibromatosis and running! We want to do something BIG...
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