Join the Littlest Tumor Foundation to Find a Cure
for Neurofibromatosis

1 in 3,000 live with neurofibromatosis (NF). No treatments and mountains of manifestations. Together, we can change that.
Get Involved

You have the power to make a real impact on thousands of young lives nationwide.

Your donations to the Littlest Tumor Foundation help support advocacy, advance research, and empower families affected by neurofibromatosis (NF) through supportive programming. Empower children with NF to live better lives by supporting our foundation’s cause.

Finding a Cure for a Better Tomorrow

Empower

Are you affected by NF and in need of compassionate support?

Access resources through our NF Young Adult Leadership Program, NF Family Wellness Retreat, and NF Collective.

Advocate

A cure for NF is only possible with research. 

Use your voice to advance federally funded NF research.

Fundraise

Give impactful programming to the NF community.

Host or create a fundraiser for the Littlest Tumor Foundation and provide life changing resources to help families living with neurofibromatosis. 

Invest in the NF Community

Give monthly. Change lives.

When you invest in The Littlest Tumor, you aren’t just donating to the neurofibromatosis cause. You are empowering children by supporting organizations dedicated to finding and providing an accessible cure. Your monthly donation, no matter the amount, brings us one step closer to giving them a brighter future.

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Our Donors

We are a passionate community of changemakers working daily to access a cure to neurofibromatosis(NF). As a young 501(c) 3 nonprofit organization, we are proud of the accomplishments we’ve achieved. We wouldn’t have made it this far without our generous donors.

“We give because of the great work Littlest Tumor Foundation does advocating for children with NF.”

Palumbo

“I give a little but I give often because I care a lot!”

connie

“You guys really mean a lot to me and have helped me so much. I wanted to give back and help in any way I could.”

Hannah

Our message is simple: tumors in children, we do not like them. The world needs to know about Neurofibromatosis, so we promote awareness daily. Through collaborations with Congress, non-profit organizations, and others, we work towards awareness, prevention, and—someday—a cure.

What is Neurofibromatosis?

There is currently no effective treatment for the disorder but we believe we can access a cure in our lifetime. Neurofibromatosis (NF) is a genetic disorder that can cause tumor growth, learning disorders, chronic pain, hearing and vision loss, hard-to-treat cancers, cardiovascular issues, and more.

Our Mission

Our mission is to increase understanding of neurofibromatosis (NF), empower affected families, and advance research of preventative therapies.

The Driving Force of The Littlest Tumor Foundation

The Littlest Tumor Foundation is committed to strengthening NF families, building compassion, advancing NF research, and empowering the next generation of NF leaders. We develop and deliver impactful programming including the NF Family Wellness Retreat, the NF Young Adult Leadership Program, and the NF Collective. Since 2012, we have built a successful bipartisan model that supports federally funded NF research. We promote neurofibromatosis awareness daily. Through social media, our NF Congressional Briefing, collaborations, events, and using our voices online, at symposiums, and on television and radio, we work towards awareness, prevention, and – someday – a cure.

What is NF?

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Get Involved

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Find a Doctor

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Ways to Give

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Advocacy

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Attend an Event

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Looking to support families with neurofibromatosis at an event near you?