You can make a difference in the future of neurofibromatosis.

Support a community of doers that are impacting millions of lives nationwide.

The sky’s the limit. So, how will you contribute to the future of NF?

Here are three ways to make a difference:


Do you want to make an impact within your community by bringing awareness to neurofibromatosis?

Create, attend, or host an event. Access tools and resources that make it easy for you to start and get support from our team in bringing awareness to your bold initiative.


Do you want to get your family involved in transformational change while having a good time?

Attend one of our upcoming events and support youth and families affected by NF in your community, or better yet, host your own event.

Are you or your young one affected by neurofibromatosis and in need of compassionate support?

Engage with our community and access powerful resources for support and wellness.


Do you want to use your voice to create impactful change?

Tell your Federal Legislators to support funding for the National Institutes of Health (NIH) and Congressionally Directed Medical Research Program (CDMRP) for continued forward-thinking neurofibromatosis (NF) research.

With your help, the CDMRP has received $347.9 million for NF research (FY96-FY19). By signing our letter of support, this number will grow.

Together, we have done more for the NF cause than you can shake a stick at.

We have engaged in countless sporting awareness events, advocated, educated, fundraised, and even shaved our heads! Our team has spoken with 435+ legislative offices, hiked MILES through the halls of Congress, and gathered thousands of signatures. We even seized the opportunity to speak with President Obama about neurofibromatosis.

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