Join the Littlest Tumor Foundation Programs
Providing supportive programming to the NF community is at the core of what we do.
Our programs allow those affected to speak freely about their journey, get the support they need from others with similar lived experiences and access resources that help improve their overall wellbeing.
NF Family Wellness Retreat
Are you or your little one living with NF?
The NF Family Wellness Retreat is an opportunity to connect with other families affected by NF. The 4-day retreat is free to families, including food and lodging, and has been positively impacting our community since 2010.
Retreat priorities are to strengthen the family unit, promote healthy lifestyles, and address NF manifestations.
NF Young Adult Leadership Program
Are you a young adult living with NF and want to make a difference in your community?
The NF Young Adult Leadership Program is an opportunity for NF-affected young adults to learn effective advocacy skills and speak directly to policymakers about NF. The 5-day program is the first of its kind, allowing young adults to make a difference in the NF community.
Program priorities are to create leaders, advance research, and bring new voices to the forefront of advocacy.
NF Young Adult International Summit
Are you a young adult living with NF who wants to connect with the worldwide NF community?
The NF Young Adult International Summit is a one-day gathering of NF patients, advocates, researchers, and more from around the world. Participants engage in educational and community-building workshops and plug into a vast network of support.
Program priorities are to learn more about NF and bring the global NF community together.
NF Collective
On December 4, 2015, spearheaded by the Littlest Tumor Foundation, various leaders in the NF community met in Washington, D.C. to discuss and establish a collective impact initiative. Our ongoing work to scale up is much more effective as a collective effort than any of us could achieve as individual organizations.
What we have established is a single, nationwide website that NF patients and their families can visit to find a doctor, specialist and medical facility that will meet their needs.
We believe this NF Provider Website will be vital to NF patients and their families as well as medical professionals working in the field. Connecting NF patients with appropriate medical care moves the NF cause forward, bringing effective treatments, prevention and cures within reach.
Creating powerful changes comes from a passion for the cause and a belief that we, as a community, can make a difference.
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