About Littlest Tumor Foundation
Non-Profit Fighting Neurofibromatosis (NF)
Our message is simple: tumors in children, we do not like them. The world needs to know about Neurofibromatosis (NF), so we promote awareness daily. Through social media, and collaboration with foundations, associations, and others, we work toward awareness, treatment and prevention, and — someday — a functional cure.
We believe in the abundant possibility of NF children. Neurofibromatosis, because chronic and progressive, takes a toll on the entire family. With that in mind, we host an annual NF Family Wellness Retreat. It is a mashup of knowledge-building, compassion, and adventure — in fact, it’s life-changing. We also sponsor community races and endorse an active, balanced lifestyle. We are committed to wellness in children.
Empower the NF Community
We spearheaded and currently chair the NF Collective with eight other NF ally organizations. We are currently developing the NF Leadership Program- more to come.
The Littlest Tumor Foundation is committed to the infinite possibility of forward-thinking Neurofibromatosis (NF) research. We support, advocate, and educate about the critically-important Congressionally-Directed Medical Research Program (CDMRP) and the research conducted through the National Institutes of Health (NIH). The CDMRP has received $332.9M directly for NF research to date (FY96- FY18).
In fact, Wisconsin is a bi-partisan model of legislative support for the nation. We co-host Congressional Briefings, speak with all 435 House of Representative offices and many Senate offices, asking for congressional support. We serve on research panels.