About Littlest Tumor Foundation

Non-Profit Fighting Neurofibromatosis (NF)

Promote Awareness

Our message is simple: tumors in children, we do not like them. The world needs to know about Neurofibromatosis (NF), so we promote awareness daily. Through social media, and collaboration with foundations, associations, and others, we work toward awareness, treatment and prevention, and — someday — a functional cure.

Champion Wellness

We believe in the abundant possibility of NF children. Neurofibromatosis, because chronic and progressive, takes a toll on the entire family. With that in mind, we host an annual NF Family Wellness Retreat. It is a mashup of knowledge-building, compassion, and adventure — in fact, it’s life-changing. We also sponsor community races and endorse an active, balanced lifestyle. We are committed to wellness in children.

Advance Research

The Littlest Tumor Foundation is committed to the infinite possibility of forward-thinking Neurofibromatosis (NF) research. We support, advocate, and educate about the critically-important Congressionally-Directed Medical Research Program (CDMRP) and the research conducted through the National Institutes of Health (NIH). The CDMRP has received $303M directly for NF research to date (FY96- FY16).

In fact, Wisconsin has become a bi-partisan model of legislative support for the nation. We talk to everyone and have visited all 435 House of Representative offices and many Senate offices, asking for congressional support. We co-host congressional briefings, serve on research panels, and spearheaded and currently chair the NF Collective with eight other NF ally organizations.