You can make a difference in the future of neurofibromatosis.

Support a community of doers that are impacting millions of lives nationwide. 
The sky’s the limit. So, how will you contribute to the future of NF?

Here are three ways to make a difference:

Fundraise

Do you want to make an impact within your community by bringing awareness to neurofibromatosis?

Create, attend, or host an event. Access tools and resources that make it easy for you to start and get support from our team in bringing awareness to your bold initiative.

Events

Do you want to get your family involved in transformational change while having a good time?

Attend one of our upcoming events and support the NF community.

Advocate

Do you want to use your voice to advance NF research?

Tell your Congressional representative to support funding for the federal Neurofibromatosis Research Program and bring us closer to a cure.

Together, we have done more for the NF cause than you can shake a stick at.

We have engaged in countless sporting awareness events, advocated, educated, fundraised, and even shaved our heads! Our team has spoken with 435+ legislative offices, hiked MILES through the halls of Congress, and gathered thousands of signatures. We even seized the opportunity to speak with President Obama about neurofibromatosis.

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