Blog: Wellness Diaries
Family matters with the Palumbos
By Sophia Thomas From the time he was born, Michael Palumbo has been in and out of the hospital. When he was nine years old, he had to have his leg amputated due to pseudarthrosis, a tibial fracture that failed to heal properly. At 23, he had two bypasses to...
NF young adult Garrett Dohlke is finding his voice
By Sophia Thomas In the fall of 2016, Garrett Dohlke, then 15, was taking to the roads of Saint Louis, Missouri in preparation for his driving test. He’d just started his sophomore year of high school and was full of excitement for everything that lay ahead....
Pursuing a diagnosis with Jak Henderson
By Sophia Thomas Jak Henderson watched the doctor examine the brown spots scattered across their daughter’s skin and waited for a diagnosis. Seven-year-old Jillian had been experiencing ear, nose, and throat issues, high blood pressure, and low muscle tone...
NF young adult Zachary York reaches new heights
By Sophia Thomas In July of 2006, Zachary York stood at the top of Mount Whitney, sporting a proud smile and gear from many big outdoor clothing brands on the market. The climb was the culmination of months of networking and planning. For his high school...
NF mom extraordinaire Nicole Jenne on love and courage
By Sophia Thomas When Nicole Jenne’s youngest son, Matthew, was nine months old, a pediatrician told her that he needed to see a doctor for the brown spots scattered across his skin. The spots had never concerned Nicole. She had them too, and so did her oldest...
NF Symptoms: Bumps
I’m sure everyone who experiences NF symptoms gets insecure about their bumps. Especially when people point them out. It's even worse if they tell you that you should keep them covered up. Well, I’ve been there too, and here is how I succeeded in becoming more...
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