May 07 2021


01:00 PM - 01:45 PM

Congressional Briefing

We’re bringing the capitol to you! This May, we’re opening up our NF congressional briefing to the entire NF community. Tune in to a Zoom call with congresspeople, researchers, and NF patients working to raise NF awareness and secure research funding. Our team will address the CDMRP, National Institutes of Health, and other public and private research partnerships, whose work helped lead to 2020’s first-ever FDA-approved drug for neurofibromatosis type 1. Sit in on the conversations that set things in motion and change lives. Save your virtual seat for May 7, 2021, from 1:00-1:45 pm EST, at

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