Help Us Get Federal Funding for Medical Research

NF medical research saves money and lives. Federal funding for the Neurofibromatosis Research Program (NFRP) needs continued legislative and grassroots support. 175 million Americans in this generation alone are poised to benefit from the Congressionally Directed Medical Research Program (CDMRP).

NF is the most common neurological condition caused by a single gene. Medical breakthroughs from the CDMRP-NFRP, ongoing since 1996, have set in motion limitless possibilities for future treatments of uncontrollable tumor growth and hard to treat cancer, cardiovascular disease, war related injuries, behavior and brain function, pain management, bone repair and nerve regeneration. This high-impact, high-yield research critically supports and augments ongoing research and initiatives by other agencies such as the National Institutes of Health (NIH).

Important Contributions

• Mechanism for tumor growth and pathway linkage to numerous cancers
• Development of tumor generating cell-line
  Consortium of research sites
• Development of promising clinical trials

Sign this letter to send your federal legislators a clear message: tumors in children, I do not like them, and I support funding the NIH and CDMRP-NF Research Programs in fiscal year 2025.

Do you want to help advocate for the NF community but you’re not sure where to start? Here’s our step-by-step guide to help you get started! In our advocacy guide, you’ll find information on how to call your congresspeople, collect signatures, fundraise, table at your local farmers market or university, and more. LTF is always available for additional questions outside of the guide, too. Thank you for educating yourself and getting involved! The NF and LTF community thanks you.