Join a nationwide community

on a mission to cure NF.

3.9 million people live with NF.
Limited treatments and mountains of manifestations.
Together, we can change that.

Get Involved

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You have the power to make a real impact on thousands of young lives nationwide.

Finding a Cure for a Better Tomorrow

Empower

Are you affected by NF and in need of compassionate support?

Access resources through our NF Young Adult Leadership Program, NF Family Wellness Retreat and NF Collective.

Our Programs

Advocate

Treatments for NF are only possible with research.

Use your voice to advance federally funded NF research.

Take Action

Fundraise

Give impactful programming to the NF community.

Host or create a fundraiser for the Littlest Tumor Foundation and provide life-changing resources to help families living with NF.

Impact Lives

Invest in the NF Community

Give monthly. Change lives.

Your donations to the Littlest Tumor Foundation help support advocacy, advance research, and empower families affected by NF through supportive programming. Empower children with NF to live better lives by supporting our foundation’s cause.

Click here to make a one-time donation

Our Donors

We are a passionate community of changemakers working daily to access a cure for NF. As a young 501(c) 3 nonprofit organization, we are proud of the accomplishments we’ve achieved. We wouldn’t have made it this far without our generous donors.

“We give because of the great work Littlest Tumor Foundation does advocating for children with NF.”

Palumbo

“I support LTF for my granddaughter, Jillian, and all the other children and families affected by NF. I have seen, first hand, all the support LTF gives to those afflicted and their families. LTF is amazing!”

Jacquelyn

“You guys really mean a lot to me and have helped me so much. I wanted to give back and help in any way I could.”

Hannah

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Our message is simple: tumors in children, we do not like them. The world needs to know about NF so we promote awareness daily. Through collaborations with Congress, non-profit organizations and others, we work toward awareness, prevention and more treatments.

What is NF?

NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body.

NF includes neurofibromatosis type 1 (NF1), and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2), formerly called neurofibromatosis type 2.

There is currently one effective treatment for the disease and we believe we can access more cures in our lifetime.

Our Mission

Increase understanding of NF, empower affected families and advance research of preventative therapies.

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The Driving Force of The Littlest Tumor Foundation

The Littlest Tumor Foundation is committed to strengthening NF families, building compassion, advancing NF research and empowering the next generation of NF leaders. We develop and deliver impactful programming including the NF Family Wellness Retreat, the NF Young Adult Leadership Program and the NF Collective. Since 2012, we have built a successful bipartisan model that supports federally funded NF research. We promote NF awareness daily. Through social media, our NF Congressional Briefing, collaborations, events, and using our voices online, at symposiums, and on television and radio, we work toward awareness, prevention and more treatments.

Get to Know Our Team