2026 NF Congressional Briefing

Join us in the nation’s capital as we highlight how federally funded NF research transforms the lives of people with NF. You’ll hear from an incredible panel of people impacted by NF and engaging in NF research. We want as many changemakers there as possible, so please contact your state senators and ask them to send a staffer. You can find your state senators HERE.

Panel:

• Amy Wilke, NF Young Adult

• Jack Shern, M.D., National Cancer Institute (NCI), National Institutes of Health (NIH)

• Dr. Theresa Miller, CDMRP NF Research Program

• Simon Vukelj, Children’s Tumor Foundation

• Valencia Nelson, NF Parent