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Jan 03 2022 - Jan 07 2022


08:00 AM - 06:00 PM

NF Young Adult Leadership Program

Calling young adults with NF! Do you want to make your voice heard at the national level, develop your leadership skills and personal strengths, and help the NF community find effective treatments? Our NFYA Leadership Program will teach you how to communicate effectively, speak publicly, and build upon your leadership knowledge while providing you with an opportunity to advocate for NF research in Washington, D.C. We believe NF-affected young adults hold the power to make real change for the entire NF community. Ready to apply? Click here to get started. We can’t wait to see you make a difference! 

*Participants must be 18 years of age or older at the start of the program to be considered.

NF Young Adult Leadership Program
Starting on
January 3, 2022
Ending on
January 7, 2022
In addition to NF’s clinical impacts, young people with NF are faced with the common and often elevated challenges of young adulthood. Yet, resources for this group are virtually nonexistent. We created the NF Young Adult Leadership Program to help NF youth develop critical leadership skills, advocate for NF solutions, educate Congress, and advance NF research. This five-day program includes workshops with leadership experts and mentors, meetings with Congressional leaders in DC, visits to all 435 Congressional offices, and the NF Congressional Briefing. NF Young Adult Leadership Program 2022 Application Link
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