The Littlest Tumor Foundation in the Press

NBC26 Cares featured us! We are very thankful to be showcased by a great media outlet.

We were thrilled, honored, and so HAPPY to be in Parents magazine. Bring on national NF awareness!

I write this as I sit in an MRI room while my 8-year-old son Sami is scanned for the umpteenth time. Here we go – this is a big one. It is a follow-up scan from one just over a week ago. Enhancement. A possible brain tumor. All the other tumors are stable and I am told not to worry yet. This is not possible. But this is not where our story begins. It actually began in a doctor’s office three and a half years ago.

I was moved this week when I read an article written by my friend’s sister. I wanted to use my blog this week to share it with you for two main reasons.

First, I wanted to give some publicity to the rare condition of Neurofibromatosis as it is something that many of us know nothing about. Briefly, it affects 1 in 3,000 children and causes tumors to grow anywhere in the body including the brain and spine and can cause a series of other significant health issues. They range from serious skeletal abnormalities, to endocrine issues, to difficult-to-treat cancers. Much is not understood.